We were overjoyed when he said "Amma" and "Papa" for the first time

Atif Shaikh was born on July 13, 2015, and has been receiving treatment at the Chingari Trust since September 2019. He receives physiotherapy, speech therapy, and special education. He suffers from developmental delay, microcephaly, and seizure disorder. His father is a gas survivor.

Talking about Atif's life, Atif's mother Mrs. Saira Bano told us:

“When Atif was born, he wasn't blinking or taking milk. The doctor told us he was having seizures. They kept him in the hospital on machines for twenty-one days before discharging him. For nine days, they didn't even let us see him. For five months after his discharge, he had seizures every eight to fifteen days, and then they stopped. But now he's ten years old, and when he turned nine and a half, he had seizures again. Initially, we had him treated by various neuro doctors. Finally, we took him to Gauri Pandit Madam (pediatric neurologist), who referred us to Chingari Trust. Atif was three and a half years old at that time. Before coming to Chingari Trust, he couldn't speak. We were overjoyed when he said "Amma" and "Papa" for the first time. And when he wrote small and big (Hindi Alphabet) for the first time, we were very happy that he can also write. Both me and my husband work and my sister takes care of him. Once someone told my sister that you are taking care of such a crazy child, that day I felt very bad. Atif's very fond of vehicles. He often tells us that “when I will grow up then I will be driving the car and mummy & papa will sit at the backside”. When Amir bhai (Chingari's Van Driver), comes to pick him then also he says that one day he will drive the van and take children to Chingari. He also likes watching Motu Patlu, Shin Chan and Hulk Cartoon on television. He also loves playing with other children in the neighbourhood.”

 


Talking about Atif's physiotherapy treatment journey at Chingari Trust, his physiotherapist, Dr. Lubhna Baig, says that initially all his developmental milestones were delayed. He couldn't hold his neck, sit, stand, or walk. He also had balance issues and poor hand functioning. But now, all his developmental milestones have been achieved. He can hold his neck, his trunk control and muscle strength have improved, his walking abnormalities have reduced, and his gait has improved. Sitting posture and balance have also improved significantly, and his hand functionality has also improved.

Talking about speech therapy, his speech therapist Nousheen Khan says that initially Atif was unable to speak a single word. He would constantly drool. He also had difficulty in chewing and swallowing food. Atif's eye contact and attention were also poor. There were also issues with tongue and lip movements. But now he has started speaking sentences. The drooling has completely stopped. He is able to chew and swallow his food properly. Attention and eye contact have also improved. Lip movements have become proper and tongue movements have also improved by about sixty percent. He now recites poems and tells about his daily routine.

Speaking about Atif, his special education teacher, Ritu Rai, explains that initially, Atif was completely dependent on his guardians for all his daily living activities. He was socially active but needed supervision. His communication and interaction with others was also limited. In academics, he could only write "A" by joining dots. Now, he has started doing some tasks on his own, such as brushing his teeth, bathing, eating, and dressing. However, he still needs assistance with some tasks, such as tying shoelaces, buttoning, and zipping. He tries to manage his belongings by himself. Socially, he has become quite confident and friendly. He enjoys playing group games like cricket with his friends. He has begun to understand social rules and follow simple commands. He displays responsible and cooperative behavior with peers and teachers. In academics he can copy and write A to Z and single word independently. Can do counting from 1 to 300 and write number names. Can identify fruits, vegetables, transport, and animals. Understands time on digital watch and can read it correctly. Recognizes money (ten rupee note) and can purchase small items from a shop. Learning and understanding have improved significantly .

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